Eosinophilic Esophagitis, Allergies, and GI Surgery…. OH MY!

Blurry, but still cute! If there is one word that comes to mind when I think of Jackson, it is resilient. This little boy, despite a myriad of health and developmental issues never fails to surpass everyone’s expectations and blow us all away. In February after some extensive testing, we found out that one of the reasons Jackson has such issues with gagging and vomiting is because he has a condition called Eosinophilic Esophagitis. It is as confusing a condition {Read More}

Because you can’t be strong all the time #autism

Having a sick child is hard…even if it’s just a cold or the flu…working to get your little one better can be exhausting and do a number on your nerves. And as a parent, that’s how it’s supposed to be. You worry and hope and pray and give medicine at 2 in the morning until they are better because it’s what’s in your heart. My friends have often remarked about my good composure as a mother. When I have admitted {Read More}

When you don’t take care of yourself, you can’t take care of anything.

Morning Mushrooms. Shot with Instagram after the rain last week. Since I became a mom it has become increasingly hard to remeber to focus on myself and what I need from time to time. I’m always thinking about Jackson and his Autism and what we need to do next for him…and I always (willingly) take a back seat to all that because I genuinely want the best for him. Well, all my self-neglect finally caught up with me when I found {Read More}

Half waking

The last few days have been a blur of high fevers, tons of vomit, a hospital stay, and total exhaustion. Jackson and I have both been crazy sick, and he ended up having to stay over night at the hospital on Friday because he had been vomiting so much he was dehydrated (poor little guy). While staying with him at the hospital, I started feeling cold symptoms and by Sunday I had nasty fever and chills too. We have literally {Read More}

Off and On

Late Wednesday evening I was feeling a bit “off” and decided I should just try to rest and relax for a few days. I think sometimes when you are really busy, you don’t realize you’re overwhelmed until you can’t breathe. I still do not feel very well, but I did manage to relax most of the weekend. I even finished Season 3 of Mad Men (which was fabulous!) and I now cannot wait to find out what’s going to happen {Read More}

Uplifting

My brother’s biopsies came back. The doctors said that the cells the PET scan detected were not cancer cells, but actually different ones related to his lowered immunity. The lymphoma was only found in one tumor in his spine, but that can be treated with radiation and chemo. They believe with treatments that in time, he should be fine. Today is good day. P.S. Thank you to everyone who prayed for him. It obviously worked.

Don’t worry, you’re not crazy

There was another post here previously. One with a nasty rant from me. Anyway, after re-reading it I decided it should come down. I don’t like negative anything.It just makes me feel weighed down. If you read that post just know I’m over all that. If you didn’t read it, you’re probably better off. Today I’ve been really sick. I’m hoping to feel better tomorrow because I have 80 gillion things to get done. Tomorrow is Monday. Trust me, I’m {Read More}

Helpless is

The feeling the ER nurse and I both shared last night as she told me that even though Jackson’s condition seemed rather critical that the wait would be at least 3 hours. Made me wonder how long the non-critical cases were having to wait. I got angry and left after an hour and a half…and cried in the car on the way home. He’s doing a little better now…prayer is sometimes the best medicine.

Cheesy self portrait

I scrapped the other day for the first time in weeks. I’m very ill, and managed only this layout before I crawled back in bed. Hoping to feel 100% again by tomorrow, because you know…it would totally suck to be sick on Christmas.

Yuck

Well, it seems I’m sick. I’ve got fever and chills and all kinds of congestion. Hopefully I’ll return soon feeling better than this. Because my house needs cleaning…like seriously.